This drives me crazy!!!
Sensory integration therapy works, it changes lives, it has improved the quality of life for countless people. Yet, it's not recognized in many places as a valid therapy because it is not in the DSM. I think people are so bogged down arguing over whether sensory processing disorder is its own condition or a co-condition that they are not listening to the many adults who struggle with it.
I had the privilege of talking with Temple Grandin about this awhile ago. We address speech issues, behavior issues, and language issues in people with autism. Could it be the professional community is unable to address sensory issues because they can't relate to, or understand them? What I mean is neurotypical people don't feel like a dentist is drilling into their eardrum when they hear a siren or feedback from a microphone. So if they have no common experience, can that cause them to discount the experience of those with SPD?
On a happy note, sensory integration therapy has dramatically changed the quality of my son's life. No more self injurious behavior, when he falls he registers pain normally now. He doesn't melt down if a firetruck rolls by with it's siren blaring. We do have some sensitivities, like say to garbage trucks, but nothing that harms the quality of life.